Humble Beginnings
In 1997, a group of Professional Volunteers under the leadership of Youssouf Noormamode, C.S.K, Founder of EDYCS Epilepsy Group rallied together to form a voice for epilepsy in the Republic of Mauritius. Since 1997, we have been serving the country as a registered health charity incorporated under the statutes of the Registrar of Associations as a non-profit and non-governmental organization. We aim to advocate the Rights of Persons with epilepsy, raise public awareness, improve education through publications, conferences and outreach initiatives.
Where are we now?
Today, EDYCS Epilepsy Group has 4 full time established operating Centers in Mauritius and Rodrigues islands. Over the years, the structure and management have evolved into an organization much greater than the founding group of members could have imagined. Through it all however, our mission remains unchanged:
EDYCS Epilepsy Group exists to promote independence and optimal quality of life for those living with seizure disorders by promoting information, awareness, support services, advocacy, education and research.
What is epilepsy?
Epilepsy is estimated around more than 20,000 people in the Republic of Mauritius. It is the most common serious brain disorder affecting people of all ages, religions, communities and social backgrounds. Epilepsy is a tendency to have recurrent seizures called ‘fits’ or ‘seizures’ which originate from the brain. These result from disturbances in the brain’s normal electrical activity. Congenital abnormalities, prenatal and perinatal factors, severe head trauma or injury, infections of the brain, cerebrovascular disease, brain malformations, cerebral tumors can lead to epilepsy. Learning disability and behavior disturbance are also commonly found in many people with chronic epilepsy.
Our Vision
EDYCS Epilepsy Group’s vision is to create an epilepsy free community.
Our Mission
EDYCS Epilepsy Group is dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders through the development of appropriate strategies, programs and services addressing their needs and fulfilling their Rights.
Our Values
Our members are patients and family focused. We work collaboratively with our Professional & Government partners. We work cross sectors to bring epilepsy out of the shadows in the Republic of Mauritius, its outer islands and Africa.
Our Key Objectives
Our Core Areas of Work
A glimpse at our Operating Centers (Mauritius & Rodrigues islands)
The Center located at Boulevard Rivaltz Port Louis was inaugurated on 27 November 2007 by His Excellency, Sir A. Jugnauth, GCSK, KCMG, PC, QC, the President of the Republic of Mauritius. It is fully equipped and staffed to provide free support services to registered People with Epilepsy in terms of:
EDYCS Help to Grow Educational & Rehabilitation Center
EDYCS Help to Grow Educational & Rehabilitation Center is a registered SEN School to the Ministry of Education established on 24th February 2010 with the prime objective to provide inclusive education to children and young adolescents with epilepsy and learning disorders. The Center is staffed with a Manager, 3 SEN Educators, a Carer and a Handyman. The school is supported by both the Ministry of Education Grant and CSR funding.
EDYCS Rodrigues Epilepsy Health Service Center
The Center located at Quarters la Ferme was inaugurated on by Mr. Ladd Emilien, Rodrigues Regional Assembly Commission for Health and the Chairperson of the NGO Trust Fund. It is managed by a full time Service Coordinator employed under the National Social Inclusion Foundation Programme Grant to provide free support services to registered People with Epilepsy in Rodrigues in terms of:
EDYCS Rodrigues Help to Grow Educational & Rehabilitation Center
EDYCS Rodrigues Help to Grow Educational & Rehabilitation Center is a registered SEN School to the Rodrigues Regional Assembly Commission of Education established on with the prime objective to provide inclusive education to children and young adolescents with epilepsy and learning disorders. The Center is staffed with a Manager, 3 SEN Educators, a Carer and a Handyman. The school is supported by the RRA Commission for Education Grant.
Our Registration
Our Affiliation (Mauritius)
Our Recognition (Mauritius)
Our Regional & International Affiliations
Bank Information
Awards
Our Strategic Goals
The following strategic goals represent longer-term directions that represent explicit major choices about the scope of EDYCS Epilepsy Group’s efforts and the outcomes we want to achieve, taking advantage of internal strengths and external opportunities. The achievement of these Strategic Goals will represent significant improvements within the organization and help fulfill EDYCS Epilepsy Group vision and mission. Our core areas of intervention will be:
PURPOSE OF STRATEGIC GOALS
EDYCS Epilepsy Group sees continued opportunity in its strategic positioning as the leading multidisciplinary epilepsy professional organization. At the same time, the role of EDYCS Epilepsy Group is evolving with changes in health care, social programmes, pressures from the decline in our sources of funding, and changing expectations around professional development and education. In order to be well-positioned for these changes, EDYCS Epilepsy Group is proposing achievable plan to guide its work for the next two years.
PROMOTION EPILEPSY EMPLOYMENT RIGHTS
STRATEGY 1: Collaborate with the National Social Inclusion Foundation
STRATEGY 2: Strengthen and develop new partnership with National and Regional Stakeholders to the promotion of the Rights of Persons with Epilepsy and Employment.
IMPLEMENTATION & PROMOTION WHO RESOLUTION ON THE GLOBAL BURDEN OF EPILEPSY
STRATEGY 1: Collaborate with the AFRICA REGIONAL EXECUTIVE COMMITTEE IBE
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